World HSP Day |* making HSP visible together*
On Saturday, 17 October 2026, it is World HSP Day. On this day, people with HSP and PLS, families, researchers, healthcare professionals and organisations around the world come together to raise awareness of these rare neurological conditions.
There is currently no treatment that can stop the progression of HSP or PLS. Greater awareness, international collaboration and scientific research are therefore urgently needed. Every step counts. You can help, but so can your family and friends.
Share your message on World HSP Day
Would you like to help make HSP visible? On Saturday, 17 October, post a photo/video on your social media and use the text below:
Dear everyone, for me, walking is a major challenge. For you, helping may be a small step. Will you join the fight against HSP?
Go to WorldHSPDay.com and donate. Every euro will go towards research.
Use the following hashtags: #hspplsworldawarenessday #hspandpls #eurohsp #life4hsp #medicalresearch
Also tag your national HSP organisation, EURO-HSP and Life4HSP, so that together we can create one strong global voice.
Together in the Netherlands and around the world
World HSP Day does not stand alone. From 16 to 18 October 2026, the international EURO-HSP Congress will also take place in the Netherlands. HSP organisations, patients, researchers and others involved will come together from different countries to share knowledge and strengthen international collaboration around HSP. EURO-HSP confirms that World HSP Day in 2026 will be combined with the annual EURO-HSP Convention, organised by Life4HSP.
Join the international webinar on 17 October
On Saturday, 17 October, from 11:00 AM to 3:00 PM (CEST), EURO-HSP, Life4HSP and Spierziekten Nederland are organising an international webinar.
During this live broadcast, neurologists, researchers, patients and representatives of HSP organisations from different countries will share their insights. They will discuss the latest developments in research, inspiring initiatives and why international collaboration is so important.
Everyone is welcome to watch the webinar online.
Join us
Whether you share a post, tell your story, raise awareness of HSP among others or make a donation: every step counts. Together, we make HSP visible. Together, we support research. Together, we work towards a future without progression.
Read more, get involved and view the full programme on the website World HSP day
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