{"id":3865,"date":"2025-08-30T09:43:14","date_gmt":"2025-08-30T07:43:14","guid":{"rendered":"https:\/\/life4hsp.com\/?p=3865"},"modified":"2025-09-01T20:29:19","modified_gmt":"2025-09-01T18:29:19","slug":"hans-klok-geeft-startschot-voor-onderzoek-naar-zeldzame-spieraandoening-hsp","status":"publish","type":"post","link":"https:\/\/life4hsp.com\/it\/hans-klok-geeft-startschot-voor-onderzoek-naar-zeldzame-spieraandoening-hsp\/","title":{"rendered":"Hans Klok d\u00e0 il via alla ricerca sulla rara malattia muscolare HSP"},"content":{"rendered":"<p>Illusionist Hans Klok heeft vrijdag 29 augustus een cheque van \u20ac55.124 overhandigd aan het <a href=\"https:\/\/www.radboudfonds.nl\/home\">Radboud Fonds,<\/a> namens Stichting Life4HSP. <span class=\"TextRun SCXW51310168 BCX8\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW51310168 BCX8\">De <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">feestelijke <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">uitreiking <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">vond<\/span> <span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">plaats<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\"> in de <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">theatertent<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\"> van Hans Klok op het <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">evenemententerrein<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\"> in Huizen. De cheque <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">werd<\/span> <span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">officieel<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\"> in <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">ontvangst<\/span> <span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">genomen<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\"> door <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">Fr\u00e9deriqu\u00e9<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\"> Donders van het <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">Radboud Fonds<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\">, Jorik <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">Nonnekes<\/span> <span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">e<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\"> Lotte van de Venis van het <\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW51310168 BCX8\">Radboudumc<\/span><span class=\"NormalTextRun SCXW51310168 BCX8\">.<\/span><\/span><\/p>\n<p><span data-contrast=\"auto\">Hans Klok is sinds dit jaar ambassadeur van Life4HSP. Zijn betrokkenheid is persoonlijk: een goede vriend van de illusionist lijdt aan de zeldzame spier- en zenuwaandoening Hereditaire spastische paraparese (HSP).<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"wp-image-3869 alignleft\" src=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/08\/2025-08-29-HSP-Hans-Klok-highres-5-300x200.jpg\" alt=\"Donaties Life4HSP voor onderzoek Radmoudumc\" width=\"302\" height=\"201\" srcset=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/08\/2025-08-29-HSP-Hans-Klok-highres-5-300x200.jpg 300w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/08\/2025-08-29-HSP-Hans-Klok-highres-5-1024x683.jpg 1024w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/08\/2025-08-29-HSP-Hans-Klok-highres-5-768x512.jpg 768w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/08\/2025-08-29-HSP-Hans-Klok-highres-5-1536x1025.jpg 1536w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/08\/2025-08-29-HSP-Hans-Klok-highres-5-2048x1366.jpg 2048w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/08\/2025-08-29-HSP-Hans-Klok-highres-5-18x12.jpg 18w\" sizes=\"(max-width: 302px) 100vw, 302px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><i><span data-contrast=\"none\">\u201cDit raakt mij persoonlijk. Ik wil er alles aan doen om meer bekendheid en steun te cre\u00ebren voor onderzoek naar HSP,\u201d aldus Hans Klok.<\/span><\/i><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: left;\">Foto&#8217;s: Jan Buteijn &#8211; Bunito<\/p>\n<h2><b><span data-contrast=\"auto\">Onderzoek naar thuistrainingsprogramma<\/span><\/b><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/h2>\n<p><span data-contrast=\"auto\">De donatie wordt ingezet voor het onderzoek naar het <\/span><a href=\"https:\/\/life4hsp.com\/it\/binnenkort-re-train-hsp-thuistraining-voor-mensen-met-hsp\/\"><span data-contrast=\"none\">\u2018Re-Train HSP\u2019-programma:<\/span><\/a><span data-contrast=\"auto\"> een innovatieve thuistrainingsaanpak van het Radboudumc. Met digitale begeleiding van therapeuten werken pati\u00ebnten vanuit huis gericht aan hun conditie, met als doel het tegengaan van stijfheid en spasticiteit. Dit kan hun zelfstandigheid en levenskwaliteit aanzienlijk verbeteren.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Alex Sijm, bestuurslid van Life4HSP, benadrukt het belang: <\/span><i><span data-contrast=\"none\">\u201cDit initiatief biedt pati\u00ebnten de mogelijkheid om laagdrempelig en persoonlijk vanuit huis te trainen. De steun van het Radboudumc is hierbij van onschatbare waarde.\u201d<\/span><\/i><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/p>\n<h2><b><span data-contrast=\"auto\">Informazioni su Life4HSP<\/span><\/b><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/h2>\n<p><span data-contrast=\"auto\">Stichting Life4HSP werd in mei 2025 opgericht en haalde sindsdien al ruim \u20ac130.000,- op. Naast de bijdrage aan het Radboud Fonds waarvan er bijna \u20ac70.000,- bestemd voor Europees medicijnonderzoek om de ziekte te stoppen.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">De stichting wordt gedragen door een actieve groep vrijwilligers, donateurs en ambassadeurs. Het verzoek tot steun voor het Re-Train HSP-programma komt rechtstreeks vanuit het Radboudumc en sluit naadloos aan bij de missie van Life4HSP: onderzoek stimuleren en de kwaliteit van leven voor HSP-pati\u00ebnten verbeteren.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Voor het realiseren van verder onderzoek is dit jaar nog \u20ac370.000,- nodig. Doneren kan via: <\/span><a href=\"https:\/\/life4hsp.com\/it\"><span data-contrast=\"none\">www.life4hsp.com<\/span><\/a><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Illusionist Hans Klok heeft vrijdag 29 augustus een cheque van \u20ac55.124 overhandigd aan het Radboud Fonds, namens Stichting Life4HSP. De feestelijke uitreiking vond plaats in de theatertent van Hans Klok op het evenemententerrein in Huizen. De cheque werd officieel in ontvangst genomen door Fr\u00e9deriqu\u00e9 Donders van het Radboud Fonds, Jorik Nonnekes en Lotte van de [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":3868,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[12],"tags":[],"class_list":["post-3865","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nieuws"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Hans Klok geeft startschot voor onderzoek spieraandoening HSP<\/title>\n<meta name=\"description\" content=\"Illusionist Hans Klok geeft startschot voor onderzoek naar spieraandoening HSP en overhandigd cheque van \u20ac55.124 aan het Radboudfonds.\" \/>\n<meta name=\"robots\" content=\"index, follow, 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