{"id":4008,"date":"2025-11-17T22:14:45","date_gmt":"2025-11-17T20:14:45","guid":{"rendered":"https:\/\/life4hsp.com\/?p=4008"},"modified":"2025-11-17T22:29:12","modified_gmt":"2025-11-17T20:29:12","slug":"linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km","status":"publish","type":"post","link":"https:\/\/life4hsp.com\/fr\/linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km\/","title":{"rendered":"Linde en action pour la HSP : Ma randonn\u00e9e de 125 km"},"content":{"rendered":"

Je suis ravie que tu sois tomb\u00e9 sur ce blog. Je m\u2019appelle Linde, et je suis heureuse de te raconter mon action pour Life4HSP. J\u2019esp\u00e8re que mon histoire t\u2019inspirera \u00e0 agir toi aussi.<\/span><\/p>\n

Il y a un peu plus de deux ans, nous avons appris que mon p\u00e8re souffre de la maladie musculaire h\u00e9r\u00e9ditaire HSP (Parapl\u00e9gie Spastique H\u00e9r\u00e9ditaire). Et si tu es arriv\u00e9 sur ce blog, c\u2019est probablement parce que, d\u2019une mani\u00e8re ou d\u2019une autre, tu es toi aussi confront\u00e9 \u00e0 cette maladie. Depuis la cr\u00e9ation de la fondation Life4HSP, j\u2019ai toujours voulu faire quelque chose. Je voulais contribuer \u00e0 la collecte de fonds pour la recherche et \u00e0 la sensibilisation autour de la HSP. C\u2019est pourquoi, \u00e0 l\u2019\u00e9t\u00e9 2025, j\u2019ai parcouru 125 kilom\u00e8tres \u2014 le Gelukkigerwijspad \u2014 avec des amis et des membres de ma famille.\nPeut-\u00eatre veux-tu toi aussi agir, mais tu ne sais pas encore quoi faire, ou tu es encore en train de r\u00e9fl\u00e9chir \u00e0 comment organiser ton action. <\/span> \"Linde<\/span><\/p>\n

Fais quelque chose qui te correspond<\/span><\/b>\u00a0<\/span><\/h2>\n

Ce genre de conseil peut sembler \u00e9vident, mais choisis une action qui te correspond vraiment. Quelque chose que tu aimes faire, qui te motive. Peut-\u00eatre devras-tu te pr\u00e9parer ou t\u2019entra\u00eener \u2014 si cela te pla\u00eet, aucun souci. Mais si tu as l\u2019impression que c\u2019est une obligation, cela risque d\u2019enlever le plaisir de la pr\u00e9paration de ton action. <\/span>\u00a0<\/span><\/p>\n

\"LindeJ\u2019ai longtemps r\u00e9fl\u00e9chi au type d\u2019action que je voulais entreprendre. Faire de la p\u00e2tisserie ? Parcourir le Pieterpad \u00e0 v\u00e9lo ? Ce n\u2019est qu\u2019en en parlant avec mes parents que j\u2019ai senti que la marche \u00e9tait le meilleur choix pour moi. Je marche souvent, j\u2019ai d\u00e9j\u00e0 fait des randonn\u00e9es de plusieurs jours et je connais suffisamment de personnes qui aiment m\u2019accompagner.\u00a0<\/span><\/p>\n

En choisissant une action autour de la marche, j\u2019ai pris plaisir \u00e0 organiser les \u00e9tapes, les h\u00e9bergements et \u00e0 savoir qui m\u2019accompagnait quel jour. Cet enthousiasme \u00e9tait contagieux. Les gens sont devenus curieux et ont eu envie de participer \u00e0 l\u2019action.<\/span>\u00a0<\/span><\/p>\n

M<\/span>obilise tout ton r\u00e9seau\u00a0<\/span><\/b>\u00a0<\/span><\/h2>\n

Ton r\u00e9seau, les personnes qui te sont proches, sont g\u00e9n\u00e9ralement celles qui font un don. En les impliquant, ils sollicitent \u00e0 leur tour leur propre r\u00e9seau. De cette fa\u00e7on, ton action se propage rapidement. Pour moi, cela a permis de r\u00e9colter pr\u00e8s de 6 000 \u20ac. Ne te d\u00e9courage pas \u00e0 cause de ce montant : chaque don compte.\u00a0<\/span>\u00a0<\/span><\/p>\n

Je me demandais si d\u2019autres personnes ressentaient la m\u00eame chose : qui attend encore une \u00e9ni\u00e8me action pour une bonne cause ? Mais ce doute n\u2019\u00e9tait pas n\u00e9cessaire. J\u2019ai constat\u00e9 que les gens aiment aider, surtout lorsqu\u2019ils voient que cela te touche personnellement. Ils ne donnent peut-\u00eatre pas pour la cause, mais pour toi \u2014 et cela a aussi beaucoup de valeur.\u00a0<\/span>\u00a0<\/span><\/p>\n

\"LindePlus que de l\u2019argent<\/span><\/b>\u00a0<\/span><\/h2>\n

Pour moi, cette action repr\u00e9sentait bien plus que la collecte d\u2019argent. J\u2019ai ressenti apr\u00e8s coup une grande connexion avec les personnes qui m\u2019ont soutenue. De plus, cette action a cr\u00e9\u00e9 des occasions de parler du HSP. Ces conversations \u00e9taient parfois tristes, mais surtout tr\u00e8s belles.\u00a0<\/span>\u00a0<\/span><\/p>\n

Reste visible\u00a0<\/span><\/b>\u00a0<\/span><\/h2>\n

La r\u00e9alit\u00e9 est que les gens oublieront probablement vite ton action. Essaie d\u2019\u00e9viter cela. Partage ce que tu fais pendant l\u2019action, publie des photos ou de courtes vid\u00e9os. Ainsi, ton action reste \u00ab vivante \u00bb. Ce qui a bien fonctionn\u00e9 pour moi, c\u2019est de laisser la page de l\u2019action ouverte avant et apr\u00e8s. Cela donne aux gens plus de temps pour faire un don, voire en faire plusieurs.\u00a0<\/span>\u00a0<\/span><\/p>\n

\"LindeToi aussi, tu peux le faire<\/span><\/b>\u00a0<\/span><\/p>\n

Mon action a permis de r\u00e9colter un beau montant. Comment ? En informant les gens de mon action le jour de mon anniversaire et en leur demandant un don. C\u2019\u00e9tait mon plus beau cadeau d\u2019anniversaire. Cela m\u2019a paru inhabituel de demander de l\u2019argent, mais cela a donn\u00e9 un excellent d\u00e9part \u00e0 mon action (et j\u2019ai atteint mon objectif presque imm\u00e9diatement). J\u2019ai donc ajust\u00e9 mon objectif. Je ne savais vraiment pas \u00e0 quoi m\u2019attendre.\u00a0<\/span>\u00a0<\/span><\/p>\n

J\u2019ai appris gr\u00e2ce \u00e0 cette exp\u00e9rience que tout le monde peut faire quelque chose. Pas besoin d\u2019\u00eatre un sportif de haut niveau ou un fundraiser professionnel. Il s\u2019agit de l\u2019intention et du premier pas que tu oses faire. Que tu organises une vente de g\u00e2teaux, une marche sponsoris\u00e9e ou que tu collectes des bouteilles consign\u00e9es \u2014 cela fait vraiment une diff\u00e9rence !<\/span>\u00a0<\/span><\/p>\n

J\u2019esp\u00e8re que mon exp\u00e9rience t\u2019a aid\u00e9. Si tu veux en savoir plus, partager ton histoire ou r\u00e9fl\u00e9chir ensemble \u00e0 l\u2019action qui te convient, \u00e9cris \u00e0\u00a0<\/span><\/b>media@life4hsp.com<\/span><\/b><\/a>\u00a0ils me transmettront ton message.\n\nAvec amour,\nLinde\u00a0<\/span><\/b>\u00a0<\/span><\/p>\n

Souhaites-tu cr\u00e9er ta propre action ? Tu peux le faire via cette<\/a> page<\/p>","protected":false},"excerpt":{"rendered":"

Wat leuk dat je op dit blog bent beland. Ik ben Linde, en ik vertel je graag over mijn actie voor Life4HSP. Hopelijk inspireert mijn verhaal jou om ook in actie te komen. Ruim twee jaar geleden kregen we te horen dat mijn vader de erfelijke spierziekte HSP (Hereditaire Spastische Paraparese) heeft. En waarschijnlijk ben […]<\/p>\n","protected":false},"author":6,"featured_media":4009,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[5],"tags":[],"class_list":["post-4008","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"acf":[],"yoast_head":"\nLinde in actie voor HSP: Mijn wandeltocht van 125km - Life4HSP<\/title>\n<meta name=\"description\" content=\"Ruim twee jaar geleden kregen we te horen dat mijn vader de erfelijke spierziekte HSP (Hereditaire Spastische Paraparese) heeft.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/life4hsp.com\/fr\/linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Linde in actie voor HSP: Mijn wandeltocht van 125km - 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