{"id":3629,"date":"2025-07-04T22:43:04","date_gmt":"2025-07-04T20:43:04","guid":{"rendered":"https:\/\/life4hsp.com\/?p=3629"},"modified":"2025-12-23T00:15:10","modified_gmt":"2025-12-22T22:15:10","slug":"binnenkort-re-train-hsp-thuistraining-voor-mensen-met-hsp","status":"publish","type":"post","link":"https:\/\/life4hsp.com\/fr\/binnenkort-re-train-hsp-thuistraining-voor-mensen-met-hsp\/","title":{"rendered":"Bient\u00f4t disponible : RE-TRAIN-HSP \u2013 Entra\u00eenement \u00e0 domicile pour les personnes atteintes de HSP"},"content":{"rendered":"<p>In 2026 starten Life4HSP en het <a href=\"https:\/\/www.radboudumc.nl\/patientenzorg\/aandoeningen\/h\/hereditaire-spastische-paraparese\">Radboudumc<\/a> lanceront l\u2019\u00e9tude RE\u2011TRAIN\u2011HSP : un projet neuf et prometteur destin\u00e9 aux personnes atteintes de parapl\u00e9gie spastique h\u00e9r\u00e9ditaire (HSP). Cette initiative offre un moyen simple et personnalis\u00e9 de travailler la condition physique et la mobilit\u00e9 \u00e0 domicile, avec un accompagnement \u00e0 distance.<\/p>\n<h3 class=\"x_wordsection1\"><b data-olk-copy-source=\"MessageBody\">Pourquoi cette \u00e9tude?<\/b><\/h3>\n<p class=\"x_wordsection1\">L\u2019HSP est une maladie neurologique rare provoquant une raideur et une faiblesse progressive des jambes. L\u2019activit\u00e9 physique est essentielle pour conserver mobilit\u00e9 et autonomie aussi longtemps que possible. Pourtant, l\u2019acc\u00e8s \u00e0 un encadrement professionnel ou \u00e0 un entra\u00eenement adapt\u00e9 n\u2019est pas toujours \u00e9vident. RE\u2011TRAIN\u2011HSP souhaite changer cela.<\/p>\n<h3 class=\"x_wordsection1\"><b>Entra\u00eenement personnalis\u00e9 \u00e0 distance<\/b><\/h3>\n<p class=\"x_wordsection1\">Gr\u00e2ce au financement de la Gossweiler Foundation, 53 personnes atteintes d\u2019HSP pourront participer au projet. Chaque participant b\u00e9n\u00e9ficiera d\u2019un appareil de fitness \u00e0 domicile (comme un v\u00e9lo d\u2019appartement) adapt\u00e9 \u00e0 ses pr\u00e9f\u00e9rences et capacit\u00e9s. Les participants indiquent via une application (au moins deux fois par semaine) comment ils se sentent et comment se d\u00e9roulent les s\u00e9ances.<\/p>\n<p class=\"x_wordsection1\">Ils sont accompagn\u00e9s \u00e0 distance par des th\u00e9rapeutes sp\u00e9cialis\u00e9s du Radboudumc. L\u2019entra\u00eenement vise \u00e0 am\u00e9liorer la condition physique, l\u2019\u00e9quilibre et la mobilit\u00e9, afin de pr\u00e9server l\u2019autonomie et la qualit\u00e9 de vie.<\/p>\n<h3 class=\"x_wordsection1\"><b>Science et approche humaine<\/b><\/h3>\n<p class=\"x_wordsection1\">L\u2019\u00e9tude d\u00e9butera en septembre 2025 et se poursuivra jusqu\u2019\u00e0 fin 2028. Pendant cette p\u00e9riode, des s\u00e9ances d\u2019entra\u00eenement seront dispens\u00e9es et des \u00e9valuations effectueront l\u2019impact sur le fonctionnement quotidien et le bien-\u00eatre. Les r\u00e9sultats seront partag\u00e9s avec les associations de patients, publi\u00e9s dans des revues scientifiques internationales, et pr\u00e9sent\u00e9s lors de conf\u00e9rences.<\/p>\n<h3 class=\"x_wordsection1\"><b>Un b\u00e9n\u00e9fice pour tous<\/b><\/h3>\n<p class=\"x_wordsection1\">Ce qui rend RE\u2011TRAIN\u2011HSP unique, c\u2019est que le programme complet sera rendu public \u00e0 la fin de l\u2019\u00e9tude. Les personnes atteintes d\u2019HSP en Europe et au-del\u00e0 pourront en b\u00e9n\u00e9ficier. Le partage des connaissances se fera notamment via le <a href=\"https:\/\/www.ern-rnd.eu\/\">European Reference Network for Rare Neurological Diseases.<\/a><\/p>\n<h3 class=\"x_wordsection1\"><b>Faciliter l\u2019acc\u00e8s \u00e0 l\u2019entra\u00eenement physique<\/b><\/h3>\n<p class=\"x_wordsection1\">Gr\u00e2ce \u00e0 une contribution suppl\u00e9mentaire de Life4HSP <strong>\u20ac55.124,-<\/strong> tous les participants auront acc\u00e8s \u00e0 un \u00e9quipement adapt\u00e9 \u00e0 domicile ainsi qu\u2019\u00e0 un accompagnement \u00e0 distance par un physioth\u00e9rapeute et un chercheur junior. Cela \u00e9limine un obstacle important : pouvoir s\u2019entra\u00eener depuis chez soi, en toute s\u00e9curit\u00e9 et efficacit\u00e9.<\/p>\n<p>Vous recevrez bient\u00f4t des informations sur les modalit\u00e9s de participation, l\u2019accompagnement propos\u00e9 et le d\u00e9roulement de l\u2019entra\u00eenement.<\/p>\n<p>Souhaitez-vous \u00e9galement contribuer \u00e0 ce type de projets?<strong> <a href=\"https:\/\/life4hsp.com\/fr\/ce-que-vous-pouvez-faire-pour-life4hsp\/\">cliquez ici<\/a> <\/strong>D\u00e9couvrez ici comment vous impliquer afin que nous puissions ensemble rendre possible encore plus de recherches essentielles.<\/p>","protected":false},"excerpt":{"rendered":"<p>In 2026 starten Life4HSP en het Radboudumc met het onderzoek RE-TRAIN-HSP: een nieuw en veelbelovend project voor mensen met Hereditaire Spastische Paraparese (HSP). Dit initiatief biedt de mogelijkheid om op een laagdrempelige en persoonlijke manier te werken aan conditie en mobiliteit, gewoon vanuit huis, met begeleiding op afstand. Waarom dit onderzoek? HSP is een zeldzame [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":3630,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-3629","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-onderzoek"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Binnenkort: RE-TRAIN-HSP \u2013 Thuistraining voor mensen met HSP - Life4HSP<\/title>\n<meta name=\"description\" content=\"Met RE-TRAIN-HSP willen we op een laagdrempelige manier werken aan conditie en mobiliteit, gewoon vanuit huis, met begeleiding op afstand.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/life4hsp.com\/fr\/binnenkort-re-train-hsp-thuistraining-voor-mensen-met-hsp\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Binnenkort: RE-TRAIN-HSP \u2013 Thuistraining voor mensen met HSP - 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