{"id":1060,"date":"2025-03-17T15:42:40","date_gmt":"2025-03-17T15:42:40","guid":{"rendered":"https:\/\/life4hsp.com\/?p=1060"},"modified":"2025-06-18T21:32:31","modified_gmt":"2025-06-18T19:32:31","slug":"life4hsp-lancement-durant-la-journee-europeenne-des-soins-le-12-mai","status":"publish","type":"post","link":"https:\/\/life4hsp.com\/fr\/life4hsp-lancement-durant-la-journee-europeenne-des-soins-le-12-mai\/","title":{"rendered":"Lancement de Life4HSP lors de la Journ\u00e9e europ\u00e9enne des soins le 12 mai"},"content":{"rendered":"

Le lundi 12 mai 2025, Life4HSP sera officiellement lanc\u00e9. La fondation s'engage \u00e0 trouver un traitement et \u00e0 am\u00e9liorer la vie des personnes atteintes de parapar\u00e9sie spastique h\u00e9r\u00e9ditaire (HSP). Dans le monde entier, jusqu'\u00e0 800 000 personnes pourraient souffrir de cette maladie h\u00e9r\u00e9ditaire incurable.<\/p>\n

Double objectif de Life4HSP<\/h3>\n

HSP veroorzaakt progressieve stijfheid en spasticiteit in de benen waardoor staan en lopen steeds moeilijker worden. Mensen met HSP hebben vaak uiteindelijk een rolstoel nodig. Op dit moment is er geen effectieve behandeling voor de erfelijke ziekte. Life4HSP richt zich op twee kerndoelen:<\/a> het ontwikkelen van medicatie om de voortgang van HSP te stoppen en zorgen voor trainingen en hulpmiddelen die de kwaliteit van leven van HSP-pati\u00ebnten verbeteren.<\/p>\n

Mise en commun des connaissances, de l\u2019expertise et des ressources<\/h3>\n

En recherchant une collaboration au niveau europ\u00e9en, Life4HSP rassemble les connaissances, l'expertise et les ressources, ce qui donne un \u00e9lan \u00e0 la recherche sur cette maladie rare. Pour ce faire, la fondation collabore avec le Paris Brain Institute<\/a> et Radboudumc<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

Op maandag 12 mei 2025 wordt Life4HSP officieel gelanceerd. De stichting zet zich in voor een behandeling en een beter leven voor mensen met hereditaire spastische paraparese (HSP). Wereldwijd lijden misschien wel 800.000 aan deze ongeneeslijke erfelijke ziekte. Tweeledig doel Life4HSP HSP veroorzaakt progressieve stijfheid en spasticiteit in de benen waardoor staan en lopen steeds […]<\/p>\n","protected":false},"author":2,"featured_media":3262,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[12],"tags":[],"class_list":["post-1060","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nieuws"],"acf":[],"yoast_head":"\nLife4HSP lancering stichting voor HSP<\/title>\n<meta name=\"description\" content=\"Op maandag 12 mei 2025 wordt Life4HSP officieel gelanceerd. 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