{"id":1227,"date":"2025-03-18T08:58:57","date_gmt":"2025-03-18T08:58:57","guid":{"rendered":"https:\/\/life4hsp.com\/?page_id=1227"},"modified":"2026-05-04T21:31:05","modified_gmt":"2026-05-04T19:31:05","slug":"a-propos-de-life4hsp","status":"publish","type":"page","link":"https:\/\/life4hsp.com\/fr\/a-propos-de-life4hsp\/","title":{"rendered":"\u00c0 propos de Life4HSP"},"content":{"rendered":"\t\t
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Over Life4HSP<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Over stichting Life4HSP<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Stichting Life4HSP zet zich in voor een behandeling en een beter leven voor mensen met hereditaire spastische paraparese (HSP). Life4HSP is aangewezen als algemeen nut beogendeinstelling (anbi).<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Algemeen bestuur<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Wouter de Vries (voorzitter)
Jan Pieter Bevelander (penningmeester)
Antoinette Boleij (organisatie en communicatie)
Alex Sijm (pers en media)
Edwin Kats (bestuurslid)<\/p>

De bestuursleden combineren hun expertise om de stichting effectief te leiden en de doelstellingen van de stichting te realiseren. Zij ontvangen geen beloning voor hun werkzaamheden en hebben uitsluitend recht op vergoeding voor gemaakte onkosten.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Contactgegevens<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Voorzitter:
info@life4hsp.com<\/a>
Bestuur:
office@life4hsp.com<\/a>
Penningmeester:
donations@life4hsp.com<\/a>
Pers en media:
media@life4hsp.com<\/a>
Pati\u00ebntencontact:
patientencontact@life4hsp.com<\/a><\/p>

Adres:<\/strong>
Oude Haven 35
4301 JK Zierikzee<\/p>

RSIN-nr: <\/strong>867465438
KvK-nr: <\/b>96091517
Bankrekening:\u00a0<\/span>NL43RABO0101927657<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Download<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t<\/path><\/svg>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\tBegroting 2025 - Stichting Life4HSP <\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Help mee voor een behandeling en een beter leven voor mensen met HSP<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDoneren<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tKom in actie<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Onze partners<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Stichting Life4HSP streeft naar een toekomst waarin er voor mensen met HSP een effectieve behandeling beschikbaar is. Hiervoor werken we samen met onze Europese partners. Zo bundelen we kennis, expertise en middelen, wat onderzoek naar deze zeldzame aandoening een vlucht geeft.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\"icm-logo-en\"<\/figure><\/div>
\"Logo-euro-HSP\"<\/figure><\/div>
\"\"<\/figure><\/div>\t\t\t<\/div>\n\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Over stichting Life4HSP Stichting Life4HSP zet zich in voor een behandeling en een beter leven voor mensen met hereditaire spastische paraparese (HSP). Life4HSP is aangewezen als algemeen nut beogendeinstelling (anbi). Algemeen bestuur Wouter de Vries (voorzitter)Jan Pieter Bevelander (penningmeester)Antoinette Boleij (organisatie en communicatie)Alex Sijm (pers en media)Edwin Kats (bestuurslid) De bestuursleden combineren hun expertise om […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_theme","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-1227","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nOver Life4HSP - Life4HSP<\/title>\n<meta name=\"description\" content=\"Stichting Life4HSP zet zich in voor een behandeling en een beter leven voor mensen met hereditaire spastische paraparese (HSP).\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/life4hsp.com\/fr\/a-propos-de-life4hsp\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Over Life4HSP - 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