{"id":4008,"date":"2025-11-17T22:14:45","date_gmt":"2025-11-17T20:14:45","guid":{"rendered":"https:\/\/life4hsp.com\/?p=4008"},"modified":"2025-11-17T22:29:12","modified_gmt":"2025-11-17T20:29:12","slug":"linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km","status":"publish","type":"post","link":"https:\/\/life4hsp.com\/es\/linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km\/","title":{"rendered":"Linde en acci\u00f3n por HSP: Mi caminata de 125 km"},"content":{"rendered":"

Qu\u00e9 bonito que hayas llegado a este blog. Soy Linde, y me gustar\u00eda contarte sobre mi acci\u00f3n para Life4HSP. Espero que mi historia te inspire a ponerte en acci\u00f3n t\u00fa tambi\u00e9n.<\/span><\/p>\n

Hace m\u00e1s de dos a\u00f1os nos dijeron que mi padre ten\u00eda la enfermedad muscular hereditaria HSP (Paraparesia Esp\u00e1stica Hereditaria). Y probablemente has llegado a este blog porque, de alguna manera, has tenido contacto con esta enfermedad. Desde la creaci\u00f3n de la fundaci\u00f3n Life4HSP, quer\u00eda hacer algo. Quer\u00eda contribuir a la recaudaci\u00f3n de fondos para la investigaci\u00f3n y crear m\u00e1s conciencia sobre la HSP. \nPor eso, en el verano de 2025, camin\u00e9 junto con amigos y familiares 125 kil\u00f3metros, el Gelukkigerwijspad. Tal vez t\u00fa tambi\u00e9n quieras hacer algo y a\u00fan no sabes qu\u00e9, o est\u00e1s investigando c\u00f3mo organizar tu propia acci\u00f3n. <\/span> \"Linde<\/span><\/p>\n

Haz algo que encaje contigo<\/span><\/b>\u00a0<\/span><\/h2>\n

Este tipo de consejos puede parecer obvio, pero elige una acci\u00f3n que encaje contigo. Algo que te guste, que te motive. Tal vez necesites prepararte o entrenar. Si eso te gusta, no es ning\u00fan problema. Pero si no es as\u00ed y sientes que \u201ctienes que hacerlo\u201d, el disfrute en la preparaci\u00f3n de la acci\u00f3n disminuye. <\/span>\u00a0<\/span><\/p>\n

\"LindePens\u00e9 durante un tiempo qu\u00e9 acci\u00f3n quer\u00eda hacer. \u00bfHornear algo o recorrer el Pieterpad en bicicleta? Hasta que lo habl\u00e9 con mis padres y sent\u00ed que caminar era la mejor opci\u00f3n para m\u00ed. Camino a menudo, ya he hecho rutas de varios d\u00edas y conozco a muchas personas a las que les gusta caminar conmigo.\u00a0<\/span><\/p>\n

Al crear una acci\u00f3n basada en caminar, disfrut\u00e9 organizando las rutas, los alojamientos y qui\u00e9n caminaba qu\u00e9 d\u00eda. Ese entusiasmo fue contagioso. Gracias a eso, la gente se volvi\u00f3 curiosa y quiso participar en la acci\u00f3n.<\/span>\u00a0<\/span><\/p>\n

C<\/span>ontacta con toda tu red\u00a0<\/span><\/b>\u00a0<\/span><\/h2>\n

Tu red suele ser la primera en donar. Al involucrarla, ellos tambi\u00e9n contactan con sus propias redes. De esta forma, tu campa\u00f1a crece r\u00e1pidamente. En mi caso, result\u00f3 en casi 6.000 \u20ac. No te desanimes por esa cifra: cada donaci\u00f3n cuenta.\u00a0<\/span>\u00a0<\/span><\/p>\n

Puede que otras personas compartan este sentimiento, porque yo me preguntaba: \u00bfqui\u00e9n est\u00e1 esperando otra campa\u00f1a ben\u00e9fica m\u00e1s? Pero esa sensaci\u00f3n no era necesaria. Me di cuenta de que a la gente le gusta ayudar, especialmente cuando ven que te afecta personalmente. Puede que no donen por la causa en s\u00ed, sino por ti \u2014 y eso tambi\u00e9n tiene mucho valor.\u00a0<\/span>\u00a0<\/span><\/p>\n

\"LindeM\u00e1s que solo dinero<\/span><\/b>\u00a0<\/span><\/h2>\n

Para m\u00ed, la campa\u00f1a fue mucho m\u00e1s que recaudar dinero. Sent\u00ed una gran conexi\u00f3n con las personas que me apoyaron. Adem\u00e1s, la acci\u00f3n cre\u00f3 oportunidades para hablar sobre HSP. Esas conversaciones fueron a veces tristes, pero sobre todo muy bonitas.\u00a0<\/span>\u00a0<\/span><\/p>\n

Mantente visible\u00a0<\/span><\/b>\u00a0<\/span><\/h2>\n

La realidad es que probablemente las personas olviden pronto la campa\u00f1a. Intenta evitarlo. Comparte lo que est\u00e1s haciendo, publica fotos o v\u00eddeos cortos. As\u00ed tu acci\u00f3n se mantiene \u201cviva\u201d. Para m\u00ed funcion\u00f3 bien dejar la p\u00e1gina abierta antes y despu\u00e9s de la acci\u00f3n, dando a las personas m\u00e1s tiempo para donar, incluso m\u00e1s de una vez.\u00a0<\/span>\u00a0<\/span><\/p>\n

\"LindeT\u00fa tambi\u00e9n puedes hacerlo<\/span><\/b>\u00a0<\/span><\/p>\n

Mi campa\u00f1a recaud\u00f3 una buena cantidad. \u00bfC\u00f3mo? Informando a la gente sobre la campa\u00f1a el d\u00eda de mi cumplea\u00f1os y pidi\u00e9ndoles una donaci\u00f3n. Ese fue mi mejor regalo de cumplea\u00f1os. Se sent\u00eda extra\u00f1o pedir dinero, pero le dio a mi campa\u00f1a un gran comienzo (y alcanc\u00e9 mi objetivo muy r\u00e1pido). Luego ajust\u00e9 la meta. No ten\u00eda idea de qu\u00e9 esperar.\u00a0<\/span>\u00a0<\/span><\/p>\n

Aprend\u00ed con esta experiencia que cualquiera puede hacer algo. No necesitas ser un atleta de \u00e9lite o un recaudador de fondos profesional. Se trata de la intenci\u00f3n y del paso que te atrevas a dar. Ya sea que organices una venta de pasteles, una caminata solidaria o recojas botellas retornables \u2014 \u00a1realmente marca la diferencia!<\/span>\u00a0<\/span><\/p>\n

Espero que mi experiencia te haya ayudado. Si quieres saber m\u00e1s, compartir tu historia o pensar juntos qu\u00e9 tipo de acci\u00f3n se adapta mejor a ti, escribe a\u00a0<\/span><\/b>media@life4hsp.com<\/span><\/b><\/a>\u00a0ellos me enviar\u00e1n tu mensaje. Con cari\u00f1o,\nLinde\u00a0<\/span><\/b>\u00a0<\/span><\/p>\n

\u00bfQuieres crear tu propia acci\u00f3n? Puedes hacerlo a trav\u00e9s de esta<\/a> esta p\u00e1gina.<\/p>","protected":false},"excerpt":{"rendered":"

Wat leuk dat je op dit blog bent beland. Ik ben Linde, en ik vertel je graag over mijn actie voor Life4HSP. Hopelijk inspireert mijn verhaal jou om ook in actie te komen. Ruim twee jaar geleden kregen we te horen dat mijn vader de erfelijke spierziekte HSP (Hereditaire Spastische Paraparese) heeft. En waarschijnlijk ben […]<\/p>\n","protected":false},"author":6,"featured_media":4009,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[5],"tags":[],"class_list":["post-4008","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"acf":[],"yoast_head":"\nLinde in actie voor HSP: Mijn wandeltocht van 125km - Life4HSP<\/title>\n<meta name=\"description\" content=\"Ruim twee jaar geleden kregen we te horen dat mijn vader de erfelijke spierziekte HSP (Hereditaire Spastische Paraparese) heeft.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/life4hsp.com\/es\/linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Linde in actie voor HSP: Mijn wandeltocht van 125km - 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