{"id":1060,"date":"2025-03-17T15:42:40","date_gmt":"2025-03-17T15:42:40","guid":{"rendered":"https:\/\/life4hsp.com\/?p=1060"},"modified":"2025-06-18T21:32:31","modified_gmt":"2025-06-18T19:32:31","slug":"life4hsp-lancering-tijdens-europese-dag-van-de-zorg-op-12-mei","status":"publish","type":"post","link":"https:\/\/life4hsp.com\/es\/life4hsp-lancering-tijdens-europese-dag-van-de-zorg-op-12-mei\/","title":{"rendered":"Lancering Life4HSP tijdens Europese Dag van de Zorg op 12 mei"},"content":{"rendered":"

Op maandag 12 mei 2025 wordt Life4HSP officieel gelanceerd. De stichting zet zich in voor een behandeling en een beter leven voor mensen met hereditaire spastische paraparese (HSP). Wereldwijd lijden misschien wel 800.000 aan deze ongeneeslijke erfelijke ziekte.<\/p>\n

Tweeledig doel Life4HSP<\/h3>\n

HSP veroorzaakt progressieve stijfheid en spasticiteit in de benen waardoor staan en lopen steeds moeilijker worden. Mensen met HSP hebben vaak uiteindelijk een rolstoel nodig. Op dit moment is er geen effectieve behandeling voor de erfelijke ziekte. Life4HSP richt zich op twee kerndoelen:<\/a> het ontwikkelen van medicatie om de voortgang van HSP te stoppen en zorgen voor trainingen en hulpmiddelen die de kwaliteit van leven van HSP-pati\u00ebnten verbeteren.<\/p>\n

Bundelen van kennis, expertise en middelen<\/h3>\n

Door samenwerking op Europees niveau te zoeken, bundelt Life4HSP kennis, expertise en middelen, waardoor onderzoek naar deze zeldzame aandoening een vlucht krijgt. De stichting werkt hiervoor samen met het Paris Brain Institute<\/a> y Radboudumc<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

Op maandag 12 mei 2025 wordt Life4HSP officieel gelanceerd. De stichting zet zich in voor een behandeling en een beter leven voor mensen met hereditaire spastische paraparese (HSP). Wereldwijd lijden misschien wel 800.000 aan deze ongeneeslijke erfelijke ziekte. Tweeledig doel Life4HSP HSP veroorzaakt progressieve stijfheid en spasticiteit in de benen waardoor staan en lopen steeds […]<\/p>\n","protected":false},"author":2,"featured_media":3262,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[12],"tags":[],"class_list":["post-1060","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nieuws"],"acf":[],"yoast_head":"\nLife4HSP lancering stichting voor HSP<\/title>\n<meta name=\"description\" content=\"Op maandag 12 mei 2025 wordt Life4HSP officieel gelanceerd. 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