{"id":4008,"date":"2025-11-17T22:14:45","date_gmt":"2025-11-17T20:14:45","guid":{"rendered":"https:\/\/life4hsp.com\/?p=4008"},"modified":"2025-11-17T22:29:12","modified_gmt":"2025-11-17T20:29:12","slug":"linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km","status":"publish","type":"post","link":"https:\/\/life4hsp.com\/en\/linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km\/","title":{"rendered":"Linde in Action for HSP: My 125 km Walk"},"content":{"rendered":"<p><span data-contrast=\"auto\">How nice that you\u2019ve found your way to this blog. I\u2019m Linde, and I\u2019d love to tell you about my action for Life4HSP. I hope my story inspires you to take action as well.<\/span><\/p>\n<p><span data-contrast=\"auto\">A little over two years ago, we found out that my father has the hereditary muscle disease HSP (Hereditary Spastic Paraplegia). And you\u2019ve probably ended up on this blog because, in one way or another, you are also connected to this condition. Since the founding of the Life4HSP foundation, I knew I wanted to do something. I wanted to help raise money for research and create more awareness about HSP. That\u2019s why, in the summer of 2025, I walked 125 kilometers \u2014 the Gelukkigerwijspad \u2014 together with friends and family.\nMaybe you\u2019re also considering taking action, but you\u2019re not sure what to do yet, or you\u2019re still exploring how to set up your own initiative. <\/span><span data-ccp-props=\"{}\"> <img fetchpriority=\"high\" decoding=\"async\" class=\"size-medium wp-image-4012 alignright\" src=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2152-225x300.jpeg\" alt=\"Linde \" width=\"225\" height=\"300\" srcset=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2152-225x300.jpeg 225w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2152-768x1024.jpeg 768w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2152-1152x1536.jpeg 1152w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2152-1536x2048.jpeg 1536w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2152-9x12.jpeg 9w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2152-scaled.jpeg 1920w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/span><\/p>\n<h2><b><span data-contrast=\"auto\">Do something that suits you<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/h2>\n<p><span data-contrast=\"auto\">These kinds of things may sound obvious, but choose an action that truly suits you. Something you enjoy, something that energizes you. Maybe you need to prepare or train for it \u2014 if you like that, it\u2019s no problem. But if it feels like something you have to do, it will take away the joy of preparing for your action. <\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\"><img decoding=\"async\" class=\"size-medium wp-image-4010 alignleft\" src=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/6f8bb456-7e4b-4186-a5f1-73375442ba38-300x225.jpeg\" alt=\"Linde wandeltocht HSP\" width=\"300\" height=\"225\" srcset=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/6f8bb456-7e4b-4186-a5f1-73375442ba38-300x225.jpeg 300w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/6f8bb456-7e4b-4186-a5f1-73375442ba38-1024x768.jpeg 1024w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/6f8bb456-7e4b-4186-a5f1-73375442ba38-768x576.jpeg 768w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/6f8bb456-7e4b-4186-a5f1-73375442ba38-1536x1152.jpeg 1536w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/6f8bb456-7e4b-4186-a5f1-73375442ba38-16x12.jpeg 16w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/6f8bb456-7e4b-4186-a5f1-73375442ba38.jpeg 1600w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>I spent some time thinking about what kind of action I wanted to take. Baking something? Cycling the Pieterpad? It wasn\u2019t until I talked it over with my parents that I realized walking was the best choice for me. I walk often, have done multi-day hikes before, and I know plenty of people who enjoy joining in.\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">By choosing a walking challenge, I enjoyed organizing the routes, the overnight stays, and who would join on which day. That enthusiasm was contagious. It made people curious, and soon they wanted to take part in the action as well.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<h2><span data-contrast=\"auto\">E<\/span><b><span data-contrast=\"auto\">ngage your entire network\u00a0<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/h2>\n<p><span data-contrast=\"auto\">Your network, the people closest to you, are usually the ones who donate. By engaging them, they will also involve their own networks, helping your campaign grow faster than you expect \ud83d\ude09. For me, this resulted in raising almost \u20ac6,000. Please don\u2019t be discouraged by that amount; every donation is valued.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Maybe people share this feeling, because I wondered: who is really waiting for yet another charity campaign? But there was no need for that doubt. I noticed that people are happy to help, especially when they see that it is something that personally affects you. They might not donate for the cause itself, but for you \u2014 and that is valuable too.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<h2><b><span data-contrast=\"auto\"><img decoding=\"async\" class=\"size-medium wp-image-4013 alignright\" src=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2210-225x300.jpeg\" alt=\"Linde in actie voor HSP\" width=\"225\" height=\"300\" srcset=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2210-225x300.jpeg 225w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2210-768x1024.jpeg 768w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2210-1152x1536.jpeg 1152w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2210-1536x2048.jpeg 1536w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2210-9x12.jpeg 9w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/IMG_2210-scaled.jpeg 1920w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/>More than just money<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/h2>\n<p><span data-contrast=\"auto\">For me, the campaign was about more than raising money. Afterwards, I felt a strong connection with the people who supported me and who gave me so much encouragement. Through the campaign, I also created opportunities to talk about HSP. These conversations were sometimes sad, but mostly very beautiful.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<h2><b><span data-contrast=\"auto\">Stay visible\u00a0<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/h2>\n<p><span data-contrast=\"auto\">The reality is that people will probably forget your campaign quickly. Try to prevent that. Share what you are doing during your campaign \u2014 post photos or short videos. This keeps your campaign \u201calive\u201d and visible. What worked well for me was keeping the campaign page open both before and after the action. That way, people have more time to donate, or even donate more than once.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"auto\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-4011 alignleft\" src=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/9b257cae-a8e7-4abb-be76-34019cf79148-225x300.jpeg\" alt=\"Linde wandeltocht actie HSP\" width=\"225\" height=\"300\" srcset=\"https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/9b257cae-a8e7-4abb-be76-34019cf79148-225x300.jpeg 225w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/9b257cae-a8e7-4abb-be76-34019cf79148-768x1024.jpeg 768w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/9b257cae-a8e7-4abb-be76-34019cf79148-1152x1536.jpeg 1152w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/9b257cae-a8e7-4abb-be76-34019cf79148-9x12.jpeg 9w, https:\/\/life4hsp.com\/wp-content\/uploads\/2025\/11\/9b257cae-a8e7-4abb-be76-34019cf79148.jpeg 1200w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/>You can do this too<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">My campaign raised a wonderful amount. How? I informed people about the campaign on my birthday and asked them for a donation. That was the best birthday gift for me. It felt unusual to ask people for money, but it gave my campaign a great start (and I reached my initial goal almost immediately). So I adjusted the target amount. I really had no idea what to expect.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">From this experience, I learned that anyone can do something. You don\u2019t have to be a top athlete or a professional fundraiser. It\u2019s about your intention and the step you dare to take. Whether you organize a bake sale, do a sponsored walk, or collect deposit bottles \u2014 it truly makes a difference!<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p><b><span data-contrast=\"auto\">I hope my experience has helped you. If you want to know more, share your story, or brainstorm about which campaign suits you best, email\u00a0<\/span><\/b><a href=\"mailto:media@life4hsp.com\"><b><span data-contrast=\"none\">media@life4hsp.com<\/span><\/b><\/a><b><span data-contrast=\"auto\">\u00a0they will forward your email to me.\n\nLove,\nLinde\u00a0<\/span><\/b><span data-ccp-props=\"{}\">\u00a0<\/span><\/p>\n<p>Would you like to create your own campaign? You can do so via <a href=\"https:\/\/life4hsp.com\/en\/what-you-can-do-for-life4hsp\/\">this<\/a> page<\/p>","protected":false},"excerpt":{"rendered":"<p>Wat leuk dat je op dit blog bent beland. Ik ben Linde, en ik vertel je graag over mijn actie voor Life4HSP. Hopelijk inspireert mijn verhaal jou om ook in actie te komen. Ruim twee jaar geleden kregen we te horen dat mijn vader de erfelijke spierziekte HSP (Hereditaire Spastische Paraparese) heeft. En waarschijnlijk ben [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":4009,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[5],"tags":[],"class_list":["post-4008","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Linde in actie voor HSP: Mijn wandeltocht van 125km - Life4HSP<\/title>\n<meta name=\"description\" content=\"Ruim twee jaar geleden kregen we te horen dat mijn vader de erfelijke spierziekte HSP (Hereditaire Spastische Paraparese) heeft.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/life4hsp.com\/en\/linde-in-actie-voor-hsp-mijn-wandeltocht-van-125km\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Linde in actie voor HSP: Mijn wandeltocht van 125km - 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