About us

About the Life4HSP Foundation

The Life4HSP Foundation is committed to finding a treatment and improving the lives of people with hereditary spastic paraplegia (HSP). Life4HSP is designated as a public benefit organization (ANBI).

General Board

Wouter de Vries (Chairperson)
Jan Pieter Bevelander (Treasurer)
Antoinette Boleij (Organization and Communication)
Alex Sijm (Press and Media)
Edwin Kats (Board Member)

The board members combine their expertise to effectively lead the foundation and achieve its goals. They do not receive any payment for their work and are only entitled to reimbursement for expenses incurred.

Contact Details

Chairperson:
info@life4hsp.com
Board:
office@life4hsp.com
Treasurer:
donations@life4hsp.com
Press and Media:
media@life4hsp.com
Patient Contact:
patientencontact@life4hsp.com

Address:
Oude Haven 35
4301 JK Zierikzee

Tax Identification Number: 867465438
Chamber of Commerce number: 96091517
Bank Account: NL43RABO0101927657

Help support treatment and a better life for people with HSP

Our Partners

The Life4HSP Foundation strives for a future in which an effective treatment is available for people with HSP. To achieve this, we collaborate with our European partners. By pooling knowledge, expertise, and resources, we give research into this rare condition a boost.

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