Launch of Life4HSP during European Care Day on May 12

On Monday, May 12, 2025, Life4HSP will be officially launched. The foundation is committed to finding a treatment and improving the lives of people with Hereditary Spastic Paraplegia (HSP). Worldwide, as many as 800,000 people may suffer from this incurable hereditary disease.

Dual purpose of Life4HSP

HSP causes progressive stiffness and spasticity in the legs, making standing and walking increasingly difficult. People with HSP often eventually need a wheelchair. At present, there is no effective treatment for this hereditary disease. Life4HSP focuses on two core goals: developing medication to stop the progression of HSP and providing training and tools to improve the quality of life for HSP patients.

Pooling Knowledge, Expertise, and Resources

By seeking cooperation at the European level, Life4HSP brings together knowledge, expertise, and resources, giving a boost to research into this rare condition. To achieve this, the foundation collaborates with the Paris Brain Institute and Radboudumc.