{"id":3629,"date":"2025-07-04T22:43:04","date_gmt":"2025-07-04T20:43:04","guid":{"rendered":"https:\/\/life4hsp.com\/?p=3629"},"modified":"2025-12-23T00:15:10","modified_gmt":"2025-12-22T22:15:10","slug":"binnenkort-re-train-hsp-thuistraining-voor-mensen-met-hsp","status":"publish","type":"post","link":"https:\/\/life4hsp.com\/de\/binnenkort-re-train-hsp-thuistraining-voor-mensen-met-hsp\/","title":{"rendered":"Demn\u00e4chst: RE-TRAIN-HSP \u2013 Heimtraining f\u00fcr Menschen mit HSP"},"content":{"rendered":"<p>In 2026 starten Life4HSP en het <a href=\"https:\/\/www.radboudumc.nl\/patientenzorg\/aandoeningen\/h\/hereditaire-spastische-paraparese\">Radboudumc<\/a> die Studie RE\u2011TRAIN\u2011HSP: ein neues und vielversprechendes Projekt f\u00fcr Menschen mit heredit\u00e4rer spastischer Paraplegie (HSP). Diese Initiative erm\u00f6glicht auf einfache und pers\u00f6nliche Weise Training f\u00fcr Ausdauer und Mobilit\u00e4t von zuhause aus \u2013 mit Fernbetreuung.<\/p>\n<h3 class=\"x_wordsection1\"><b data-olk-copy-source=\"MessageBody\">Warum dieses Projekt?<\/b><\/h3>\n<p class=\"x_wordsection1\">HSP ist eine seltene neurologische Erkrankung, die zu fortschreitender Steifheit und Schw\u00e4che in den Beinen f\u00fchrt. Bewegung ist entscheidend, um Mobilit\u00e4t und Selbstst\u00e4ndigkeit so lange wie m\u00f6glich zu erhalten. Professionelle Betreuung oder Zugang zu geeignetem Training ist jedoch nicht \u00fcberall gegeben. Mit RE\u2011TRAIN\u2011HSP wollen wir das \u00e4ndern.<\/p>\n<h3 class=\"x_wordsection1\"><b>Pers\u00f6nliches Ferntraining<\/b><\/h3>\n<p class=\"x_wordsection1\">Dank der Finanzierung durch die Gossweiler Foundation k\u00f6nnen 53 Menschen mit HSP am Projekt teilnehmen. Jeder Teilnehmer erh\u00e4lt ein Heimtrainerger\u00e4t (z.\u202fB. einen Ergometer), abgestimmt auf die pers\u00f6nlichen Vorlieben und F\u00e4higkeiten. \u00dcber eine App geben die Teilnehmer mindestens zweimal pro Woche an, wie sie sich f\u00fchlen und wie das Training verl\u00e4uft.<\/p>\n<p class=\"x_wordsection1\">Sie werden remote von spezialisierten Therapeuten des Radboudumc begleitet. Das Training fokussiert sich auf Verbesserung von Kondition, Gleichgewicht und Mobilit\u00e4t \u2013 mit dem Ziel, Selbstst\u00e4ndigkeit und Lebensqualit\u00e4t zu erhalten.<\/p>\n<h3 class=\"x_wordsection1\"><b>Wissenschaftlich und menschenorientiert<\/b><\/h3>\n<p class=\"x_wordsection1\">Die Studie beginnt im September 2025 und l\u00e4uft bis Ende 2028. In diesem Zeitraum werden die Trainingseinheiten und Messungen durchgef\u00fchrt gemaht, um den Einfluss auf t\u00e4gliches Funktionieren und Wohlbefinden zu dokumentieren. Die Ergebnisse werden mit Patientenverb\u00e4nden geteilt, in internationalen wissenschaftlichen Zeitschriften ver\u00f6ffentlicht und auf Kongressen pr\u00e4sentiert.<\/p>\n<h3 class=\"x_wordsection1\"><b>F\u00fcr alle nutzbar<\/b><\/h3>\n<p class=\"x_wordsection1\">Besonderheit von RE\u2011TRAIN\u2011HSP: der Trainingsinhalt wird nach Projektende vollst\u00e4ndig \u00f6ffentlich zug\u00e4nglich gemacht. So k\u00f6nnen Menschen mit HSP in Europa und dar\u00fcber hinaus davon profitieren. Der Wissenstransfer erfolgt u.\u202fa. \u00fcber das <a href=\"https:\/\/www.ern-rnd.eu\/\">European Reference Network for Rare Neurological Diseases.<\/a><\/p>\n<h3 class=\"x_wordsection1\"><b>Training von zuhause erm\u00f6glichen<\/b><\/h3>\n<p class=\"x_wordsection1\">Dank zus\u00e4tzlicher Unterst\u00fctzung von Life4HSP in H\u00f6he von <strong>\u20ac55.124,-<\/strong> haben alle Teilnehmenden Zugang zu einem geeigneten Heimtrainer sowie Betreuung durch einen Physiotherapeuten und einen Junior-Forscher. So wird eine wichtige Barriere beseitigt: von zuhause aus sicher und effektiv an der Fitness arbeiten zu k\u00f6nnen.<\/p>\n<p>In K\u00fcrze erhalten Sie detaillierte Informationen zur Teilnahme, zum Betreuungskonzept und zur Trainingsstruktur.<\/p>\n<p>M\u00f6chten Sie auch zu solchen Projekten beitragen?<strong> <a href=\"https:\/\/life4hsp.com\/de\/was-du-tun-kannst-fur-life4hsp\/\">klicken Sie hier,<\/a> <\/strong>Erfahren Sie hier, wie Sie helfen k\u00f6nnen, damit wir gemeinsam noch mehr wichtige Forschung erm\u00f6glichen.<\/p>","protected":false},"excerpt":{"rendered":"<p>In 2026 starten Life4HSP en het Radboudumc met het onderzoek RE-TRAIN-HSP: een nieuw en veelbelovend project voor mensen met Hereditaire Spastische Paraparese (HSP). Dit initiatief biedt de mogelijkheid om op een laagdrempelige en persoonlijke manier te werken aan conditie en mobiliteit, gewoon vanuit huis, met begeleiding op afstand. Waarom dit onderzoek? HSP is een zeldzame [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":3630,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-3629","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-onderzoek"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Binnenkort: RE-TRAIN-HSP \u2013 Thuistraining voor mensen met HSP - Life4HSP<\/title>\n<meta name=\"description\" content=\"Met RE-TRAIN-HSP willen we op een laagdrempelige manier werken aan conditie en mobiliteit, gewoon vanuit huis, met begeleiding op afstand.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/life4hsp.com\/de\/binnenkort-re-train-hsp-thuistraining-voor-mensen-met-hsp\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Binnenkort: RE-TRAIN-HSP \u2013 Thuistraining voor mensen met HSP - 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